Unless someone is diabetic, or very close to someone who is, they do
not realize how life changing this disease can be. I believe one of the
reasons this is, is because so many people are diagnosed with diabetes;
that somewhere down the line, the seriousness of the disease, in
people’s minds, have diminished.
Diabetes is a very serious and scary chronic illness. It is totally
life changing for those diagnosed. Eating becomes literally a matter of
life and death. And the way a person is use to eating is usually changed
drastically.
The emotional stress one goes through seems to get ignored and lost
in the endless information and directions of how to now live your life.
This is not just merely staying alive – it’s trying to stay alive
without ending up blind, on kidney dialysis, with severe nerve damage,
or amputation, just to name a few.
My life was drastically affected by diabetes twelve years ago when my
son, who is now 23, was just eleven years old, and diagnosed with
juvenile diabetes.
He has always been hyperactive, so even when he was sick, he was
active. I started to notice he was looking a little pale and losing
weight, even though he ate constantly. I made him a doctor appointment
for the next opening, which wasn’t until a month away. All of a sudden
he started wetting the bed. The urine had a very strong odor. He also
started complaining of headaches. At first I thought the complaints, was
just an excuse for the eleven-year-old to stay out of school. But when
they became so severe, I knew they were real. The second day his
headaches were so severe, he stayed home from school. He presented no
other symptoms, but he slept all day long. This was enough to definitely
make me realize something was extremely wrong. I got out my diagnosis
health encyclopedia books and after a few hours, I came down to two
diagnosis, kidney trouble or diabetes, (this was before I became a
nurse, so I was going only by his symptoms and the words on the page).
It was about 6:30 at night, when I told my husband something was
terribly wrong and I was taking our son to the emergency room.
When we arrived at the emergency room, my son had a hard time keeping
his eyes opened. We were finally called to the back, where they started
running several tests. Sure enough he was diagnosed with Type 1 Juvenile
Diabetes. His blood sugar was well over 600. Normal blood sugar levels
range from 90-110. The reason he was sleeping so much was because he was
trying to slip into a diabetic coma. The doctor said that if I didn’t
bring him in when I did, he would have went into a coma that night. They
admitted him to ICU and kept a vigil on him for three days as insulin
was delivered through IV. That was the day our lives changed forever;
especially my eleven-year-old son’s.
It was over-whelming. Three main meals a day and three snacks a day;
mandatory, with a minimum of two shots daily for the rest of his life.
To say we were under stress, would be putting it mildly. My son put on a
brave face, but about the fourth day after he was diagnosed, I had a
heart to heart with him. The poor baby thought he had brought the
diabetes on himself and was being punished for something he said.
Meanwhile, my nine-year-old at home was going through her own personal
hell. After speaking to her, I found out she was scared to death that he
was going to die, and that she was next. This came from two children
whose parents did talk to them and tried to explain everything to the
best of their ability.
Our lives became rigid, at first -- as we tried to cope with the
changes. My son, Eddie, could not just run off and play at his friend's
house whenever he wanted, or was allowed. He had to make sure he was
home to take his shots on time, to eat the regular meals and the snacks
in-between. He was a hard player, he had to learn that if he didn't eat
like he was supposed to, wheather he was hungry or not, he would end up
getting shaky. If he did not get something in him quickly to raise his
blood sugar, he may slip so low that an ambulance would have to be
called to save his life, if I wasn't there with an emergency glucagon
(intra-muscular sugar water) shot -- as he would get extremely lethargic
and not be able to communicate, or to understand what was going on
around him.
All these changes he was going through, made him feel like he was
different than the other children. He was afraid to spend a night for
quite some time after being diagnosed; because if his sugar went up too
high at night, it could cause him to wet the bed. Something that an
eleven-year-old would be horrified to do in front of his friends. We
also had to make sure if he did go spend the night with a friend, that
they had plenty of food. (Though, his back pack would be packed with
extra food for snacks, it couldn't contain the main meals.) We also had
to let the parents know he was diabetic, where they could keep an extra
eye out. This would sometimes turn into a nightmare, as Eddie did not
want to go around announcing he was diabetic. He also didn't like being
treated differently if a mother was handing out sugared drinks or
sugared snacks to the other kids.
As a mother, seeing him go through all of this, tore my heart out.
When I did let him leave, I had to worry not only what every mother
worries about when her children go off by themselves, but I had to worry
if his sugar dropped too low, would he be able to make it home {b}in
time{/b} to get something to eat? Even though he carried emergency
glucose pills for low sugar, it does not work all the time. (Depending
on how low his sugar is and if he is able to chew, and has enough sense
to take them.) When your sugar drops extremely low, you are not aware of
what you're doing. Many people have been suspected of being high on
drugs, when it is their sugar causing the strange behaviour. It's a very
scary thing to see, even more so do go through. I also had to worry if
he would go off and drink sugar drinks and go to the store and get
candy. This was not a simple concern, this could actually kill or
disable him. When your sugar gets too high, you are damaging your organs
-- and if you start spilling ketones, it becomes a very dangerous
situation. It causes ketoacidosis which causes nausea, sometimes severe
with projectile vomiting, stomach pains, confusion and drowsiness;
because their body is over-worked and worn out. It's literally starving
to death. They are also in danger of slipping into a diabetic coma. High
sugar often does develop into Diabetic ketoacidosis -- (DKA) which is a
life-threatening blood chemical (electrolyte) imbalance that develops in
a person with diabetes when the cells do not get the sugar (glucose)
they need for energy. As a result, the body breaks down fat instead of
glucose and produces and releases substances called ketones into the
bloodstream. Severe diabetic ketoacidosis can cause difficulty
breathing, brain swelling (cerebral edema), coma, or death. This is also
the time when diabetes is doing the most harm to all the organs -- which
can lead to heart failure, kidney failure, blindness, neuropathy -- and
the list goes on.
Eddie, who is now 23, has kept his sugar under good control, (not
tight, sadly -- but good) where he has not had to be hospitalized too
often. He mainly has to go into the hospital when he gets a bad illness,
such as the flu or stomach virus. When a diabetic's body is stressed
with illnesses, it causes the blood sugar to go erratic. High blood
sugars read off the chart, even when they have not been able to eat --
then their blood sugar may suddenly drop to a dangerous low. It also
makes it more difficult to control because they are not able to eat, or
maybe even drink. For diabetics, this is not an option. They are
hospitalized where they can receive I.V fluids, and keep a close check
on their blood sugar readings. Which sometimes means being pricked in
the fingers up to 8 times a day, for several days in a row.
Diabetes causes such a wide array of secondary illnesses. Including
stunting growth in a growing child. Eddie lost a whole year of growing.
When he was 13, he had the bones of an 11 1/2 yr. old. He was put on
intra-muscular testoterone shots at home. Which he took a lot better
than most adults would, every night for six months.
It hurts me now, as it has since the day he was diagnosed, to know
that he may soon be experiencing some very bad health problems because
of the diabetes. Problems start to arise mostly after being diabetic for
five years. We are living on borrowed time with decent health -- as he
now has had diabetes for twelve years. When he says his chest hurts him,
I don't think, "Oh no, he may be getting bronchitis." I think, "Oh Lord,
please let it be something as simple as bronchitis." When he tells me
his feet hurt and his whole body aches -- I know it may be a sign of
neuropathy. At 23 he experiences pains and aches no young adult should
have to face. But I praise God for each day that goes by where he is
still able to work and live life as close to a young adult as he
possibly can. God has spared us from him having any serious conditions.
I know that may change any day, but I can relish in each day it does
not.
Then there are the emotional changes diabetes puts them through. The
anger, restlessness, nervousness, inpatience -- imagine it, and it is
effected. It plays roulette with their hormones, causing their emotions
and temperment to go into extreme modes. Sadly, this seems to be most of
the time. All this happens in all diabetics, but I am concentrating on
Type 1, Juvenile Diabetes. Type 1, Juvenile on-set, varies from Type 2,
adult on-set, because with type 1, your pancreas does not produce any
insulin at all. With Type 2, it produces insulin, but not sufficient
enough, or at a normal rate.
These emotional issues are just as important to deal with as the
physical disease itself. The emotional needs must be addressed. Not only
the needs of the person diagnosed, but the whole family, and if it’s a
child, this includes the parents and siblings.
If you are living with diabetes, please make sure you get the
emotional help you so need and deserve. It’s absolutely a necessity. You
may have to live with diabetes, but make sure you have it under control,
and that it does not control you. After all, it’s a matter of life and
death – both physical and emotional.
Tracey Wilson is an author on
http://www.Writing.Com/
which is a site for
Creative Writers. Many of her writings can be found at
http://www.writing.com/authors/intuey.